Mom, author, nurse, teacher . . . reading the world around me

Category: tracheostomy

Building a World for Kids

orange and yellow tentWe just got the official news that our summer camp for kids with trachs was cancelled this year. With all the closings due to COVID-19, it’s no surprise, but it’s absolutely gut wrenching for the campers and the volunteers who go each year. Especially for the campers. Last summer, as we packed up to leave, the little boy I drove up from Savannah asked me what day it was. I told him it was Friday. He promptly replied, “Then I want to come back Saturday.” He meant the very next day. Camp is a world of its own. It’s an escape from reality.

I’ve been reflecting a good bit this past week about camp. About what it means for kids with special needs, whose daily lives are filled with treatments, procedures and medications. Kids who are often singled out and maybe even bullied at school because of their differences.

This reflection led me to remember a hectic day last summer. We’d just gotten our group of campers into the cafeteria for lunch, when two of mine said they needed to use the restroom. One of them uttered those dreaded words, “I don’t know if I can hold it.” SO, we set off at top speed for the bathrooms. The two  campers in my care had just shimmied through a row of other campers seated at long tables, when a little guy I didn’t know from a different special needs camp jumped up and stood between me and my little guys.

Before I could say a word about needing to catch up to my charges, he said (in such a serious tone of voice it was almost alarming), “I’m in that house too.”

He stared at me. Expectant. Waiting. I had no clue what he was talking about for a good 10 seconds (as I’m hoping we won’t completely miss lunch because we have to walk back to our cabin and changes clothes before the next activity). Then it hit me. I was wearing a T shirt with a printed Gryffindor logo on it. Luckily, I recovered fairly quickly, considering. “Oh, yeah,” I said. “I’m a Gryffindor through and through.” His face. It just lit up completely. We’d connected. Not through that physical place, as magical as it is. But through a world built by J.K. Rowling.

This is why I’m passionate about writing books for kids. They can’t always escape physically to a place where their problems feel miles away. But, hopefully they can always pick up a book and escape to a world built by an author. In these days of isolation, we need this more than ever! We need to build connections with people we might not get a chance to see in person like we used to. We need to see someone across a crowded room, and stop them to say, “I’m in that house too.”

Jeremiah Justice Update

With the help of Kickstarter and some amazing collaborators, I was able to raise the funds I needed to bring Jeremiah Justice Saves the Day into the world. Local Savannah artist Rashad Doucet agreed to illustrate the book, and his work is amazing! Every page has movement and action. I think kids are truly going to love this book.

I wanted to take the chance to share some of Rashad’s illustrations. Enjoy! More news will be coming soon regarding the date the book will be available to purchase. Thanks to everyone who has helped make this dream come true. I hope we can break some barriers and show that special needs kids can most definitely be superheroes.

 

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